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Story of a lost hand

Ioana Maria was born on the 15th July 2008. The joy we experienced while waitning for the birth of our first child turned into a terrible surpise. We have wanted very much a child.

Our daughter was born without half of the right forearm and hand. More specifically, according to the Medical Letter of 15/07/2008

Our present demarche envisages regular people, those people that like us experience unexpected problems. Moreover, people that are confronted by the very issues they try to prevent or remediate when they occur. We do not intend, however, to measure our sufferance with anyone else’s.

The gravity of our situation, we believe, lies not with the final medical act in itself; it rather lies with the faulty manner in which the pregnancy was monitored all along its development, with the doctors’ unsound and unprofessional explanations; also, with what could have been done to prevent this if the problem would have been traced in due course; ultimately, with what could be done now, within a collapsing medical system or, the way various ministers like to optimistically put it, in full reconstruction.

Of course there are far more difficult medical cases. But as already said, we do not intend to measure our pain with no one else’s. We do not even desire to tell our story. What compels us, however, to go publicly with it is our deep desire that at least another child might be saved from now on. Read these lines with the hope that another child and its family will not have to experience our sufferance.

What we intend to emphasise is the seriousness of the negligence, disinterest, self-sufficiency and unprofessionalism characterising the medical personnel and more precisely the employees of Giulesti Maternity (although not exclusively). We want to signal to lack of quality of the medical act in Romania and the lack of responsibility for mal praxis; also, we want to signal the consequences of any moment of inattentiveness from both the clients/patients and (first and foremost) the medical personnel.

Step by step, we started to understand the issue of responsibilities. Normally, the correct monitoring of pregnancy should exclusively lie with the specialised medical personnel. However, given that even in this regard things go otherwise in Romania comparing with the true civilised countries, in such cases the beneficiary/patient should constantly check on the quality of the medical act.

We used to have full confidence in the doctors’ professionalism, since they boasted – and still do – on their professionalism. And indeed, is it normal that the parents to be test or doubt the resolutions of an expert? Normally not. But?

It looks like in order to get more security we need to ask the doctor to thoroughly explain, step by step, everything that he/she does and to solicit the repetition of the procedure if something seems suspicious or we do not understand what is all about. At the end of the day, the doctor is supposed an action for which he/she is correctly payed, according to their financial demands.

In so far as the beneficiary/patient pays correctly, and at times more than that, why is he/she not entitled to a complete medical act, consistent with the pecuniary demands of the doctor – to expect that to the medical profession vocation should be pre-eminent sounds naïve, isn’t it?

What are our advices for you, advises that originate from an unfortunate experience? Here they are:

Choose your doctor carefully.
- Get information about his/her professional past.
- Verify thoroughly all the medical procedures.
- Request thorough explanations concerning how things go on with the pregnancy. If you do not understand, insist until you receive satisfactory answers.
- At the end of each provedure and the payment you make, request the appropriate receipt.
- Do not accept a medical procedure which is not accompanied by a document signed and stamped by the respective doctor.

 

Comments  

 
#95 2010-07-31 07:39
bafta
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#94 2010-07-17 09:49
Sa va ajute Dumnezeu sa strangeti toti banii
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#93 2010-07-16 03:42
In aceeasi situatie este si nepotica mea,insa ea are 10 ani.Este acum in clasa a lV-a.Are o proteza statica care se inlocuieste la cca 2 ani,urmand ca in momentul in care cresterea inceteaza sa i se procure proteza bionica.Aceste proteze sunt costisitoare si e necesar sa fie inlocuite ca si cele fixe la intervale destul de scurte de timp.Acum veti reusi sa faceti ceea ce v-ati propus,dar va fi greu ca o data la cativa ani sa dispuneti de aceste sume mari ptr.inlocuirea protezei.
Va inteleg perfect durerea si chinul prin care ati trecut si inca treceti..

La multi ani pentru Ioana Maria!
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#92 2010-07-15 19:17
LA MULTI ANI IOANA!!!
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#91 2010-07-15 08:38
La multi ani Ioana! Sa-ti dea Dumnezeu sanatate.
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#90 2010-07-15 05:59
Quoting teodor raus:
as dori sa intru in contact cu parintii Ioanei,ma ajuta cineva cu aceasta informatie?

0728.11.88.77 tatal Ioanei
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#89 2010-07-15 05:50
as dori sa intru in contact cu parintii Ioanei,ma ajuta cineva cu aceasta informatie?
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#88 2010-07-13 09:26
Quoting Victoria:
Va rog tare mult lasati-mi un numar de contact sau o adresa de mail. Doresc sa implementez sistemul de donatie prin sms. Am inceput sa fac demersuri in aceasta privinta, procedura este un pic mai complicata insa, nu renunt.

Multumesc frumos.
Victoria

0728.11.88.77
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#87 2010-07-13 09:20
Va rog tare mult lasati-mi un numar de contact sau o adresa de mail. Doresc sa implementez sistemul de donatie prin sms. Am inceput sa fac demersuri in aceasta privinta, procedura este un pic mai complicata insa, nu renunt.

Multumesc frumos.
Victoria
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#86 2010-07-12 11:54
Dar ce comision va opresc firmele de telefonie mobila pentru aceasta campanie, am incercat si eu o data pentru un caz similar si o firma a spus ca ei opresc in jur de 40% mi sa parut f mult
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